Yesterday was a big day for us.
We transitioned out of the ICU into a more recovery and rehab-focused unit, and it’s now been 26 hours since Maya’s EVD was removed for the second time. So far, everything is looking positive. She doesn’t seem to be in as much pain, and we’re starting to see a little more energy and color come back. She’s still not a fan of the boot for the pressure sore on her heel doing her best to kick it off whenever she can but her movements are becoming much more intentional.
Our time in the PICU, for lack of a better word, has been a whirlwind filled with both highs and lows for Maya, but slowly we're making some more progress.
And then came a moment today that completely overwhelmed me. OT and Physio came in, and with their help, Maya was able to sit up on the edge of the bed. This was huge for two reasons. First, she was using her own muscles to help support herself (with assistance), and second… I was finally able to wrap my arms around my daughter. Really wrap my arms around her and hold her tight.
I can’t even begin to put into words what that hug felt like. All I wanted in that moment was to lift her up, hold her close, and never let go. We’re getting there.
Dads little Maya Bear I love you so much.
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